Subject Overview

1. Conception of Disability

1.1 Definition

1.2 Autonomy

2. Inclusion and Exclusion

3. Ethical Theories

3.1 Recognition

3.2 Capability Approach

3.3 Care

4. Disability Rights Law

4.1 Conventions and Documents

4.2 Disability Rights in General

4.3 The International Convention on the Rights of Persons with Disability

5. Social and Economic Rights

5.1 Work and Employment

5.2 The Right to Education

5.3 Accessibility

5.4 Political Participation

6. Respect for the Family/Gender Equality

6.1 Women with Disability

6.2 Children with Disability

6.3 Sexual Rights

 - Sexual Identity and Expression

 - Procreation

 - Parenthood and Intellectual Disability

7. Right to Health

8. Right to Life

8.1 Personhood

8.2 Liberal Eugenics

8.3 Euthanasia

                        8.4 Peter Singer


Literature

1. Conception of Disability

 

1.1 Definition

  • Andreou, C. (2010): Rehabilitating Human Nature, in: Bioethics 25(9), 461-469.
  • Degener, Th (2006): The Definition of Disability in (German and) International Discrimination Law, in: Disability Studies Quarterly 26(2), 5.
  • Harris, J. (2001): One Principle and Three Fallacies of Disability Studies, in: Journal of Medical Ethics 27(6), 383 – 387.
  • Hendriks, A. C. (2002): Different Definitions — Same Problems — One Way Out?, in: M.L. Breslin and S. Yee (Eds.), Disability Rights Law and Policy. International and National Perspectives. Ardsley: Transnational, 195 – 240.
  • Hughes, B. & Paterson, K. (1997): The Social Model of Disability and the Disappearing Body: Towards a Sociology of Impairment, in: Disability and Society 12(3), 324-425.
  • Jones, M. & Basser Marks, L. A. (1999): Law and the Social Construction of Disability, in: M. Jones & L.A. Basser Marks (Eds.), Disability, Diversability and Legal Change. The Hague: Kluwer Law International, 1 – 24.
  • Kristiansen, K., Vehmas, S. & Shakespeare, T. (2009): Arguing About Disability: Philosophical Perspectives. New York: Routledge.
  • Massengill, D. (2004.): How Much Better are You? Impairments, Mitigating Measures and the Determination of Disability, in: Public Personnel Management 33(2), 181–199.
  • Morris, J. (2001): Impairment and Disability: Constructing an Ethics of Care That Promotes Human Rights, in: Hypatia: A Journal of Feminist Philosophy 16(4), 1 – 16.
  • Garland-Thomson, R. (2012): The Case for Conserving Disability, in: Journal of Bioethical Inquiry 9(3), 339-355.
  • Solli, H.M. & Barbosa da Silva, A. (2012.): The Holistic Claims of the Biopsychosocial Conception of WHO's International Classification of Functioning, Disability, and Health (ICF): A Conceptual Analysis on the Basis of a Pluralistic-Holistic Ontology and Multidimensional View of the Human Being, in: Journal of Medicine and Philosophy 37(3), 277-294.
  • Shakespeare, T. (1999): What is a Disabled Person?, in: Jones, M., Basser Marks, L.A. (Eds), Disability, Divers-ability & Legal Change, 25-34. The Hague: Kluwer.
  • Shakespeare, T. (2006): Disabilities Rights and Wrongs. Routledge: London.
  • Shakespeare, T. (2008): Disability: Suffering, Social Oppression, or Complex Predicament?, in: Düwell, M., Rehmann-Sutter, C., Mieth, D. (Eds), The Contingent Nature of Life – Bioethics and the Limits of Human Existence, 235-246. Berlin: Springer.
  • Shakespeare, T. (2008): Debating Disability, Journal of Medical Ethics 34(1), 11-14.

 

1.2 Autonomy

  • Burns, J.K. (2009): Mental health and inequity: A human rights approach to inequality, discrimination, and mental disability, in: Health and Human Rights 11(2), 19-31.
  • Gostin, L. & Gable, L. (2004). The Human Rights of Persons with Mental Disabilities: A Global Perspective on the Application of Human Rights Principles to Mental Health, Maryland Law Review 63(1), 20 – 121.
  • Graumann, Sigrid (2009): Assistierte Autonomie. Von einer Behindertenpolitik der Wohltätigkeit zu einer Politik der Menschenrechte. Utrecht: Publications of the Department of Philosophy Utrecht University.
  • Herr, S. et al. (2003): The Human Rights of Persons with Intellectual Disabilities: Different but Equal. Oxford: Oxford University Press.
  • Hunt, P., Mesquita, J. (2006): Mental Disabilities and the Human Right to the Highest Attainable Standard of Health, in: Human Rights Quarterly 28, 332-356.
  • O'Dell, R., Leafman, J. & Nehrenz, G.M. (2012). Health Care Decision Making and Adults with Intellectual Disability: A Descriptive Survey, in: American Journal of Bioethics: Primary Research 3(1), 8-13.
  • Nowak, M. & Suntinger, W. (2005): The Right of Disabled Persons not to be subjected to Torture, Inhuman and Degrading Treatment or Punishment., in: T. Degener & Y. Koster-Dreese (Eds.), Human Rights and Disabled Persons. Dordrecht: M. Nijhoff, 117 – 119.
  • Morris, J. (2004): Independent living and community care: a disempowering framework. in: Disability & Society 19(5), 427–442.
  • Wolbring, G. (2003): Disability Rights Approach Toward Bioethics?, in: Journal of Disability Policy Studies 14(3), 174 – 180.
  • Wilson, M. (2007): Human Rights and the Failure of Research Governance, in: Journal of Disability Policy 18(1), 57-59.

 

2. Inclusion and Exclusion

  • Bielefeldt, Heiner (2012): Inklusion als Menschenrechtsprinzip: Perspektiven der UN-Behindertenrechtskonvention, in: V. Moser & D. Horster (Eds.), Ethik in der Behindertenpädagogik, 149-166. Stuttgart: Kohlhammer.
  • Dederich, Markus (2012): Inklusion als Menschenrecht und Bedingung der Möglichkeit für Chancengleichheit?, Wallimann-Helmerin, I., Chancengleichheit und ‘Behinderung’ im Bildungswesen, 24-52. Freiburg im Breisgau: Karl Alber.
  • Degener, Theresia (2009): Die UN-Behindertenrechtskonvention als Inklusionsmotor, in: Recht der Jugend und des Bildungswesens 57 (2), 200–219.
  • Goodley, D. (2001): ‘Learning Difficulties’, the Social Model of Disability and Impairment: Challenging Epistemologies, in: Disability and Society 16 (2): 207-231.
  • Gordon, J.-S. (2013). Is Inclusive Education a Human Right?, in: Journal of Law, Medicine & Ethics, 41(4), S. 754-767.
  • Graumann, Sigrid (2012): Freiheit als Entwicklungskonzept und das Menschenrecht auf inklusive Bildung, in: Wallimann-Helmer, I. (Eds), Chancengleichheit und ‘Behinderung’ im Bildungswesen, 86-106. Freiburg im Breisgau: Karl Alber.
  • Grohnfeldt, M. & Leonhardt, A. (2012): Die UN-Konvention und ihre Folgen – ein Überblick aus Sicht der Förderschwerpunkte Hören und Sprache, in: Sonderpädagogische Förderung heute 57(2), 121-131.
  • Lindmeier, C. (2008): Inklusive Bildung als Menschenrecht, in: Sonderpädagogische Förderung heute 53(4), 354-374.
  • Michailakis, D. & Reich, W. (2009): Dilemmas of inclusive education, in: ALTER - European Journal of Disability Research 3(1), 24-44.
  • Montakef, M. (2006): Das Menschenrecht auf Bildung und der Schutz vor Diskriminierung. Exklusionsrisiken und Inklusionschancen., in: Studie des Deutschen Instituts für Menschenrechte. Berlin.
  • Tamor, L. & Peterson, M. (2001): Inclusive Education – Progressive Education. What is the Relationship? Whole Schooling Consortium, Wayne State University, Detroit, Michigan.

 

3. Ethical Theories

 

3.1 Recognition

  • Castro Varela, M. & Mercheril, P. (2010): Anerkennung als erziehungswissenschaftliche Referenz? Herrschaftskritische und identitätsskeptische Anmerkungen, in: A. Schäfer & C. Thompson (Eds.), Anerkennung. Paderborn: Ferdinand Schöningh, 89-118.
  • Dederich, M. (2001): Menschen mit Behinderung zwischen Anerkennung und Ausschluss. Bad Heilbrunn: Klinkhardt.
  • Dederich, M. & Schnell, M., eds. (2011): Anerkennung und Gerechtigkeit in Heilpädagogik, Pflegewissenschaft und Medizin. Bielefeld: transcript.
  • Honneth, A. (1994): Kampf um Anerkennung: zur moralischen Grammatik sozialer Konflikte. Berlin: Suhrkamp.
  • Honneth, A. (1997): Anerkennung und moralische Verpflichtung, Zeitschrift für philosophische Forschung, 51(1), 25-41.
  • Honneth, A. (1999): Integrität und Missachtung. Grundmotive einer Moral der Anerkennung. In R. Stäblein (Ed.). Glück und Gerechtigkeit. Moral am Ende des 20. Jahrhunderts. Frankfurt: Insel Verlag.
  • Moser, V. (2012): Kampf um Anerkennung aus behindertenpädagogischer Perspektive, in: V. Moser & D. Horster (Eds.), Ethik der Behindertenpädagogik. Menschenrechte, Menschenwürde, Behinderung. Eine Grundlegung. Stuttgart: Kohlhammer, 105-117.
  • Spaemann, R- (1996): Personen. Versuche über den Unterschied zwischen ‚etwas’ und ‚jemand’. Stuttgart: Klett Cotta.

 

3.2 Capability Approach

  • Bellanca, N., Biggeri, M. & Marchetta, F. (2011): An extension of the capability approach: Towards a theory of dis-capability, in: ALTER - European Journal of Disability 5(3), 158-176.
  • Clark, J. (2009): Capabilities Theory and the Limits of Liberal Justice: On Nussbaum’s Frontiers of Justice, in: Human Rights Review 10(4), 583 – 604.
  • Dubois, J.-L. & Trani, J.-F. (2009): Extending the capability paradigm to address the complexity of disability, in: ALTER - European Journal of Disability Research 3(3), 192-218.
  • Haimowitz, S. (2001): Disability Matters: Differences and Rights, in: American Journal of Bioethics 1(3), 53-54.
  • Harnacke, C. (2013): Disability and Capability: Exploring the Usefulness of Martha Nussbaum's Capabilities Approach for the UN Disability Rights Convention, in: Journal of Law, Medicine & Ethics 41 (4), S. 768-780.
  • Nussbaum, M. (1997): Capabilities and Human Rights, in: Fordham Law Review 66(2), 273 – 300.
  • Nussbaum, M. (2006): Frontiers of Justice. Disability, Nationality, Species Membership. Cambridge and London: Belknap.
  • Päivänsalo, V. (2010): Responsibilities for Human Capabilities: Avoiding a Comprehensive Global Program, in: Human Rights Review 11, 565–579.
  • Riddle, C. A. (2010): Indexing, Capabilities, and Disability, in: Journal of Social Philosophy 41(4), 527-537.
  • Riddle, C. A. (2012): Measuring Capabilities: The Case of Disability, in: Weidtmann, N., Hölzchen, Y.M. & Hawa, B. (Eds): The Capability Approach on Social Order. Münster: LIT Verlag, 49-62.
  • Sen, A. (2005): Human Rights and Capabilities, in: Journal of Human Development 6(2), 151 – 166.
  • Siegert, R. & Ward, T. (2010): Dignity, rights and capabilities in clinical rehabilitation, in: Disability & Rehabilitation 32(25), 2138-2146.
  • Stein, M.A. (2007): Disability Human Rights, in: California Law Review 95(1), 75-121.
  • Tobosco, M. (2011): Rethinking Disability in Amartya Sen's Approach: ICT and Equality of Opportunity, in: Ethics and Information Technology 13(2), 107-118.
  • Trani, J.-F., Bakhshi, P., Bellanca, N., Biggeri, M. & Marchetta, F. (2011): Disabilities through the Capability Approach lens: Implications for public policies, in: ALTER - European Journal of Disability Research 5(3), 143-157.
  • Venkatapuram, S. (2013): Health, Vital Goals and Central Human Capabilities, in: Bioethics 27(5), 271–279.

 

3.3 Care

  • Kittay, E.F. (1999): Love’s Labor. Essays on Women, Equality, and Dependency. New York/London: Routledge.
  • Kittay, E.F. (2007): A Feminist Care Ethics, Dependency, and Disability, in: APA Newsletter for Feminism and Philosophy 6 (2), 3–6.
  • Kittay, E.F. (2011): The Ethics of Care, Dependence, and Disability, in: Ratio Juris 24(1), 49-58.
  • Noddings, N. (1984): Caring: A Feminine Approach to Ethics and Moral Education. Berkeley: University of California Press.
  • Tronto, J. (1994): Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge.

 

4. Disability Rights Law

 

4.1 Conventions and Documents

  • UN Universal Declaration of Human Rights (1948)
  • UN European Convention on Human Rights (1954)
  • UN International Covenant on Economic, Social and Cultural Rights (1966)
  • UN Declaration on the Rights of Mentally Retarded Persons (1971)
  • UN Declaration on the Rights of Disabled Persons (1975)
  • UN The World Programme of Action Concerning Disabled Persons (1982)
  • ILO Convention concerning Vocational Rehabilitation and Employment of Disabled Persons (1983)
  • UN Convention on the Rights of the Child (1989)
  • UN Principles for the Protection of Persons with Mental Illness and the Improvement of Mental Health Care (1991)
  • UN Standard Rules on the Equalization of Opportunities for Persons with Disabilities (1993)
  • UNESCO Salamanca Statement and Framework for Action on Special Needs Education (1994)
  • UNSECO Guidelines for Inclusion: Ensuring Access to Education for All (2005)
  • UN Convention on the Rights of Persons with Disability (2006)

 

4.2 Disability Rights in General

  • Bartlett, P., Lewis, O. & Thorold, O. (2007): Mental Disability and the European Convention on Human Rights. Leiden: M. Nijhoff.
  • Breslin, M.L. & Yee, S. (2002): Disability Rights Law and Policy: International and National Perspectives. Ardsley: Transnational.
  • Degener, T., Koster-Dreese; Y. (Eds.). (1995). Human rights and disabled persons: Essays and relevant human rights instruments. Boston: Martinus Nijhoff Publishers.
  • Degener, Th. (2005): Antidiskriminierungsrechte für Behinderte: Ein globaler Überblick, in: Zeitschrift für ausländisches und öffentliches Recht und Völkerrecht 65, 887 – 935.
  • Degener Th. (2005): Disability Discrimination Law: A Global Comparative Approach, in: Lawson, A. & Gooding, C. (Eds.), Disability Rights in Europe: From Theory to Practice. Oxford and Portland: Hart, 87 – 106.
  • Degener, Th. (2009): Menschenrechte und Behinderung, in: Dederich, M. & Jantzen, W. (Eds.), Behinderung und Anerkennung. Stuttgart: Kohlhammer, 160-169.
  • Despouy, Leandro (1993): Human Rights and Disabled Persons. New York: United Nations.
  • Degener, Th. & Koster-Dreese, Y. (Eds.) (1995): Human rights and disabled persons: Essays and relevant human rights instruments. Dordrecht: M. Nijhoff.
  • DePoy, E. & Gilson, S. (2009): Policy Legitimacy: A Model for Disability Policy Analysis and Change, in: Review of Disability Studies 5(4), 37 – 48.
  • Dreese, Yolan (1995): Human Rights and Disabled Persons: Essays and Relevant Human Rights Instruments. Dordrecht: M. Nijhoff.
  • Fennell, P. (2008): Human Rights, Bioethics and Mental Disorder, in: Medicine and Law 27(1), 95 – 107.
  • Hucker, J. (1997): Antidiscrimination Laws in Canada: Human Rights Commissions and the Search for Equality, in: Human Rights Quarterly 19(3), 547-571.
  • Lawson, A. & Gooding, C. (2005): Disability Rights in Europe: From Theory to Practice. Oxford: Hart.
  • Soldatic, K. Pini, B. (2009): The three Ds of welfare reform: disability, disgust and deservingness, in: Australian Journal of Human Rights 15(1), 77-95.
  • Warnock, M. (2003): The Rights of the Disadvantaged, in: International Journal of Human Rights 7(1), 4 – 8.
  • Wolbring, G. (2003): Disability Rights Approach Toward Bioethics? in: Journal of Disability Policy Studies 14(3), 174-180.

 

4.3 The International Convention on the Rights of Persons with Disability (2006)

  • Aichele, V. (2008): Die UN Behindertenrechtskonvention und ihr Fakultativprotokoll. Ein Beispiel zur Ratifizierungsdebatte. Berlin: Deutsches Institut für Menschenrechte.
  • Bickenbach, J. (2009): Disability, Culture and UN Convention, in: Disability and Rehabilitation 31(14), 1111-1124.
  • Bielefeldt, Heiner (2006): Zum Innovationspotenzial der UN-Behindertenkonvention. Berlin: Deutsches Institut für Menschenrechte.
  • Degener, Th. (2006): Menschenrechtsschutz für behinderte Menschen. Vom Entstehen einer neuen Menschenrechtskonvention der Vereinten Nationen, in: Vereinte Nationen 3, 104 – 110.
  • Degener, Th. & Quinn, G. (2006): United Nations Disability Convention, in: Albrecht, G. et. al. (Eds.), Encyclopedia of Disability, Volume IV. Thousand Oaks: Sage, 1580 – 1584.
  • Degener, Th. (2009): Die UN – Behindertenrechtskonvention als Inklusionsmotor, in: Recht der Jugend und des Bildungswesen 57(2), 200 – 219.
  • Degener, Th. (2009): Die neue UN- Behindertenrechtskonvention aus der Perspektive der Disability Studies, in: Behindertenpädagogik 3, 263 – 283.
  • Degener, Th. (2010): Die UN – Behindertenrechtskonvention: Grundlage für eine inklusive Menschenrechtstheorie, in: Vereinte Nationen 58(2), 57 – 63.
  • Devi, N., Bickenbach, J. & Stucki, G. (2011): Moving towards substituted or supported decision-making? Article 12 of the Convention on the Rights of Persons with Disabilities, in: ALTER 5(4), 249-264.
  • Graumann, S. (2010): Wohltätigkeit oder Menschenrechte? Eine menschenrechtssoziologische und -philosophische Reflexion der neuen UN-Behindertenrechtskonvention, in: Jahrbuch für Recht und Ethik 18, 469 – 482.
  • Harnacke, C. (2013): Disability and Capability: Exploring the Usefulness of Martha Nussbaum's Capabilities Approach for the UN Disability Rights Convention, in: Journal of Law, Medicine & Ethics 41 (4), S. 768-780.
  • Harpur, P. (2012): Embracing the new disability rights paradigm: the importance of the Convention on the Rights of Persons with Disabilities, in: Disability and Society 27(1), 1 – 14.
  • Karr, V. (2011): A Life of Quality: Informing the UN Convention on the Rights of Persons With Disabilities, in: Journal of Disability Policy Studies 22(2), 67 – 82.
  • Kayess, Rosemary & French, Phillip (2008): Out of Darkness into Light? Introducing the Convention on the Rights of Persons with Disabilities, in: Human Rights Law Review 8(1), 1 – 34.
  • Lang, R. (2009): The United Nations Convention on the Rights and Dignities of Persons with Disability: A Panacea for Ending Disability Discrimination?, in: ALTER: European Journal of Disability Research 3(3), 266 – 285.
  • Lang, R. et al. (2011): Implementing the United Nations Convention on the Rights of Persons with Disabilities: Principles, Implications, Practice and Limitations, in: ALTER: European Journal of Disability Research 5, 206 – 220.
  • Lord, J.E., Suozzi, D. & Taylor, A.L. (2010). Lessons From the Experience of U.N. Convention on the Rights of Persons with Disabilities: Addressing the Democratic Deficit in Global Health Governance, in: Journal of Law, Medicine and Ethics 38(3),564 – 579.
  • Melish, T. (2007): The UN Disability Convention: Historic Process, Strong Prospects, and Why the U.S. Should Ratify, in: Human Rights Brief 14(2), 37 – 47.
  • Mégret, F. (2008): The Disability Convention: Towards a Holistic Concept of Rights, in: International Journal of Human Rights 12(2), 261 – 277.
  • Mégret, F. (2008): The Disability Convention: Rights for Persons with Disabilities or Disability Rights?, in: Human Rights Quarterly 30(2), 494 – 516.
  • Mladenov, T. (2013): The UN Convention on the Rights of Persons with Disability and its Interpretation, in: ALTER: European Journal of Disability Research 7, 69-82.
  • Quinn, Gerard (1999): The Human Rights of People with Disabilities under EU Law, in: Alston, P. (Ed.), The EU and Human Rights. New York: Oxford University Press, 281 – 290.
  • Quinn, Gerard (2009): Resisting the ‘Temptation of Elegance’: Can the Convention on the Rights of Persons with Disabilities Socialise States to Right Behaviour?, in: Arnadóttir, O. & Quinn, G. (Eds.), The Un Convention on the Rights of Persons with Disabilities. Leiden: M. Nijhoff, 215 – 256.
  • Quinn, G. & Degener, Th. (2002): Human rights and disability: The current use and future potential of United Nations human rights instruments in the context of disability. New York and Geneva: United Nations.
  • Quinn, G. & Degener, Th. (2006). United Nations Disability Convention, in: Albrecht, G. et. al. (Eds.), Encyclopedia of Disability, Volume IV. Thousand Oaks: Sage, 1580 – 1584.
  • Petman, J. (2009): The Special Reaching for the Universal: Why a Special Convention for Persons with Disabilities?, in: Kumpuvuori, J. & Scheinin, M. (Eds.), United Nations Convention on the Rights of Persons with Disabilities: Multidisciplinary Perspectives. Helsinki: The Center for Human Rights of Persons with Disabilities.
  • Priestley, M. (2007): In search of European disability policy: Between national and global, in: ALTER: European Journal of Disability Research 1(1), 61 – 74.
  • Stein, M.A. (2007): Disability Human Rights, in: California Law Review 95(1), 75-121.
  • Stein, M.A. & Lord, J.E. (2009-2010): Monitoring the Convention on the Rights of Persons with Disabilities: Innovations, Lost Opportunities, and Future Potential, in: Human Rights Quarterly 32(3), 689 – 728.

 

5. Social and Economic Rights

 

5.1 Work and Employment

  • Barclay, L. & Markel, K. (2009): Ethical Fairness and Human Rights: The Treatment of Employees with Psychiatric Disabilities, in: Journal of Business Ethics 85(3), 222 – 245.
  • Barnes, C., & Roulstone, A. (2005): 'Work' is a four-letter word: disability, work and welfare, in: Roulstone, A. & Barnes, C. (Eds), Working futures: Disabled people, policy and social inclusion, Bristol: The Policy Press, 315-327.
  • Bell, D., & Heitmuller, A. (2009): The Disability Discrimination Act in the UK: Helping or hindering employment among the disabled? in: Journal of Health Economics 28, 465-480.
  • Greenwood, R. & Johnson, V.A. (1987): Employer Perspectives on Workers with Disabilities, in: Journal of Rehabilitation 53, 37–45
  • Keaty, A., Srivastava, R. & Stewart, G.T. (2005): Trying to Adhere to the ADA: Understanding ‘‘Mental Disability’’ in Hiring Personnel, in: Equal Opportunities International 24(2), 42–53.
  • LaPlante, M. P., Kennedy, J., Kaye, H.S. & Wenger, B.L. (1996): Disability and Employment, in: Disability Statistics Abstract 11, 1–4.
  • Mello, J. (1999): Ethics in Employment Law: The Americans with Disabilities Act and the Employee with HIV, in: Journal of Business Ethics 20(1), 67-83.
  • Russell, M. (2002): What disability civil rights cannot do: employment and political economy, in: Disability & Society 17(2), 117–135.
  • Stefan, S. (2001): Unequal Rights: Discrimination Against People with Mental Disabilities and the Americans with Disabilities Act. Washington: American Psychological Association.
  • Towns, D.M. & Moore, J.E. (2005): Who is Running the Asylum? A Practical Approach to Managing Mental Disabilities Under the ADA, in: Employee Relations Law Journal 30(4), 27 – 41.
  • Parnes, P., Cameron, D., Christie, N. Cockburn, L., Hashemi, G. & Yoshida, K. (2009): Disability in low-income countries: Issues and implications, in: Disability & Rehabilitation (31)14, 1170-1180.
  • Owen, R. & Parker Harris, S.(2012): 'No Rights without Responsibilities': Disability Rights and Neoliberal Reform under New Labour, in: Disability Studies Quarterly 32(3).
  • Ngwena, C. (2006): Deconstructing the definition of 'disability' under the Employment Equity Act: Social deconstruction, in: South African Journal of Human Rights 22, 613-646.

 

5.2 The Right to Education

  • Devi, N., Bickenbach, J. & Stucki, G. (2011): Moving towards substituted or supported decision-making? Article 12 of the Convention on the Rights of Persons with Disabilities, in: ALTER: European Journal of Disability Research 5(4), 249 – 264.
  • Felder, F. (2012): Chancen worauf? Bildung als Befähigung und die Herausforderung von Behinderung, in: Wallimann-Helmer, I. (Eds), Chancengleichheit und ‘Behinderung’ im Bildungswesen, Freiburg im Breisgau: Karl Alber, 139-164.
  • Langenfeld, C. (2007): Das Recht auf Bildung in der Europäischen Menschenrechtskonvention.” in: Recht der Jugend und des Bildungswesens 55, 412–429.
  • McKenzie, J.A. & MacLeod, C.I. (2012): Rights Discourses in Relation to Education of People with Intellectual Disability: Towards an Ethics of Care that Enables Participation, in: Disability and Society 27(1), 15 – 29.
  • Schriner, K. & Scotch R. (2001): Disability and institutional change: A human variation perspective on overcoming oppression, in: Journal of Disability Policy Studies 12(2), 100 – 106.
  • Soldatic, K. & Pini, B. (2009): The three Ds of welfare reform: disability, disgust and deservingness, in: Australian Journal of Human Rights 15(1), 77-96.
  • Ware, L. (2002): A Moral Conversation on Disability: Risking the Personal in Educational Context, in: Hypatia: Journal of Feminist Philosophy 17(3), 143-172.
  • Wallimann-Helmer, I. (2012): Chancengleichheit und ‘Behinderung’ im Bildungswesen. Freiburg im Breisgau: Karl Alber.
  • Shah, S. (2010): Canada's Implementation of the Right to Education for Students with Disabilities, in: International Journal of Disability, Development & Education 57(1), 5-20.

 

5.3 Accessibility

  • Smith, E.R. & Riggar, T.F. (1988): Accessible Transportation: Human Rights ... Versus ... Costs, in: Journal of Rehabilitation 54(2), 13-17.
  • Toombs, S.K. (1995): The Lived Experience of Disability, in: Human Studies: A Journal for Philosophy and the Social Sciences 18(1), 9-23.
  • Imrie, R. (2012): Universalism, universal design and equitable access to the built environment, in: Disability & Rehabilitation 34(10), 873-882.
 

5.4 Political Participation

  • Antaki C., Finlay M., Walton C. & Pate L. (2008): Offering choice to people with an intellectual impairment: an interactional study, in: Journal of Intellectual Disability Research 52, 1165–1175.
  • Appelbaum P. S., Richard J., Bonnie J. D. & Karlawish J. H. (2005): The capacity to vote of persons with Alzheimer's disease, in: American Journal of Psychiatry 162, 2094–2100.
  • Redley, M., Maina, E., Keeling, A. & Pattni, P. (2012): The voting rights of adults with intellectual disabilities: reflections on the arguments, and situation in Kenya and England and Wales, in: Journal of Intellectual Disability Research 56(11), 1026-1035.
  • Green B. B. & Klein N. K. (1980): The mentally retarded and the right to vote,in: Northeastern Political Science Association 13, 184–206.
  • Keeley, H., Redley, M., Holland, A. J. & Clare, I. C. H. (2008): Participation in the 2005 general election by adults with intellectual disabilities, in: Journal of Intellectual Disability Research 52, 175–181
  • Redley M. (2008): Citizens with learning disabilities and the right to vote, in: Disability & Society 23, 375–384.

 

6. Respect for Family/Gender Equality

 

6.1 Women with Disability

  • Abu-Habib, L. (1997): Gender and disability: Women's experiences in the Middle East. Oxford: Oxfam Publishing.
  • Barron, K. (1997): The bumpy road to womanhood, in: Disability & Society 12(2), 223-240.
  • Belaza, M. L. (2003): Discrimination against women with disabilities. Strasbourg: Council of Europe Publishing.
  • Bernert, D.J. (2011): Sexuality and Disability in the Lives of Women with Intellectual Disabilities, in: Sexuality & Disability 29(2), 129-141.
  • Blanck, P., Reina, M.V., & Adya, M. (2007): Defying double discrimination, in: Georgetown Journal of International Affairs 8(1), 95-104.
  • Boylan, E. (1991): Women and disability. London: Zed Books Ltd.
  • Burke, R. J. (1999): Disability and women’s work experiences: An exploratory study, in: International Journal of Sociology and Social Policy 19(12), 21-33.
  • Corker, M. (2001): Sensing Disability, in: Hypatia 16(4) Special Issue: Feminism and Disability, Part 1, 34-52.
  • Degener, Th. (2001): Disabled Women and International Human Rights, in: K. Askin & D. Koenig (Eds.), Women and International Human Rights Law. Volume 3, Ardsley. N.Y.: Transnational, 267 – 293.
  • Foster, K. & Sandel, M. (2010): Abuse of Women with Disabilities: Toward an Empowerment Perspective, in: Sexuality & Disability 28(3), 177-186.
  • Habib, L. A. (1995): Women and disability don't mix: Double discrimination and disabled women's rights, in: Gender and Development 3(2), 49-53.
  • Hans, A., & Patri, A. (Eds.) (2003): Women, disability and identity. Thousand Oaks, CA: Sage Publications.
  • Hassouneh-Phillips, D. & McNeff, E. (2005): “I Thought I was Less Worthy”: Low Sexual and Body Esteem and Increased Vulnerability to Intimate Partner Abuse in Women with Physical Disabilities, in: Sexuality & Disability 23(4), 227-240.
  • Moin, V., Duvdevany, I. & Mazor, D. (2009): Sexual Identity, Body Image and Life Satisfaction Among Women With and Without Physical Disability, in: Sexuality & Disability 27(2), 83-95.
  • Naami, A., Hayashi, R. & Liese, H. (2012): The unemployment of women with physical disabilities in Ghana, in: Disability & Society 27(2), 191-204.
  • Ostoleva, S. (2010): Women with Disabilities: The Forgotten Peace Builders , in: Loyola of Los Angeles International and Comparative Law Review 33(1), 83-142.
  • Paltiel, F. L. (1997): The Disabled Women's Network in Canada, in: Sexuality and Disability 15(1), 47-50.
  • Parker, M. & Yau, M. (2012): Sexuality, Identity and Women with Spinal Cord Injury, in: Sexuality & Disability 30(1), 15-27.
  • Price, J. E. (2007): Engaging disability, in: Feminist Theory 8(1), 77-89.
  • Rosqvist, H. & Lövgren, V. (2013): Doing adulthood through parenthood: Notions of parenthood among people with cognitive disabilities, in: ALTER - European Journal of Disability Research 7(1), 56-68.
  • Sampson, F. (2003): Globalization and the inequality of women with disabilities, in: Journal of Law & Equality 2(1), 16-32.
  • Wacker, J.L., Parish, S.L., Macy, R.J. (2008): Sexual Assault and Women With Cognitive Disabilities, in: Journal of Disability Policy Studies 19(2), 86-94.
  • Tilley, C. (1996): Sexuality in women with physical disabilities: A social justice or health issue, in: Sexuality & Disability 14(2), 139-151.
  • Vansteenwegen, A., Jans, I. & Revell, A.T. (2003): Sexual Experience of Women with a Physical Disability: A Comparative Study, in: Sexuality & Disability 21(4), 283-290.
  • Walter, L.J., Nosek, M.A. & Langdon, K. (2001): Understanding of Sexuality & Reproductive Health Among Women With & Without Physical Disabilities, in: Sexuality & Disability 19(3), 167-176.
  • Zincir, H., Özkan, F., Erten, Z. & Seviğ, E. (2011): Sexual Lives and Family Function of Women with Family Member with Disability: Educational Status and Income Level, in: Sexuality & Disability 29(3), 197-206.

 

6.2 Children with Disability

  • Bastos, O.M., & Deslandes, S. F. (2008): Raising children with mental disabilities: Mothers' narratives, in: Cad. Saúde Pública 24(9), 2141-2150.
  • Dos Santos, A., Pavão, S.L., de Campos, A.C. & Rocha, N.A. (2012): International classification of functioning, disability and health in children with cerebral palsy, in: Disability & Rehabilitation 34(12), 1053-1058.
  • Durkin, M.S. & Gottlieb, C. (2009): Prevention versus protection: Reconciling global public health and human rights perspectives on childhood disability, in: Disability and Health Journal 2(1), 7-8.
  • Gobrial, E. (2012): Mind the gap: the human rights of children with intellectual disabilities in Egypt, in: Journal of Intellectual Disability Research 56(11), 1058–1064.
  • McPherson, A. & Lindsay, S. (2012): How do children with disabilities view ‘healthy living’? A descriptive pilot study, in: Disability and Health Journal 5(3), 201-209.

 

6.3 Sexual Rights

 

a. Sexual Identity and Expression

  • Appel, J.M. (2010). Sex Rights for the Disabled?, in: Journal of Medical Ethics 36, 152-154.
  • Bedard, C., Hui Lan Zhang, & Zucker, K.J. (2010). Gender Identity and Sexual Orientation in People with Developmental Disabilities, in: Sexuality and Disability 28(3), 165-175.
  • Beigi, A. & Karen Kow Yep Cheng (2010). Rethinking Gender in Disabiliy Issues, in: Sexuality and Disability 28(3), 205-207.
  • Di Nucci, E. (2011). Sexual Rights and Disability, in: Journal of Medical Ethics 37(3), 158-161.
  • Evans, A. & Rodgers, M. E. (2000). Protection for whom? The right to a sexual or intimate relationship, in: Journal of Intellectual Disabilities 4, 237-245.
  • Fairbairn, G. & Rowley, D. (2005). Ethical aspects of sexuality of people with intellectual disabilities. In: Głodkowska, J. & Girynski, A. (Eds.), Sexuality of people with intellectual disabilities. Warszawa: APS. 9–23.
  • Glass, C. & Soni, B. (1999). ABC of Sexual Health: Sexual Problems of Disabled Patients, in: British Medical Journal 318(7182), 518-521.
  • Held, R.M. (1992). Ethical aspects of sexuality of persons with mental retardation, in: Sexuality and Disability 10(4), 237-243.
  • Kangaude, G. (2009). Disability, the Stigma of Asexuality and Sexual Health: A Sexual Right Perspective, in: Review of Disability Studies: An International Journal 5(4), 22-36.
  • Miller, A. (2000). Sexual but Not Reproductive: Exploring the Junction and Disjunction of Sexual and Reproductive Rights, in: Health and Human Rights 4, 68-110.
  • O’Callaghan, A.C & Murphy, G.H. (2007). Sexual relationship in adults with intellectual disabilities: understanding the law, in: Journal of Intellectual Disability Research 51, 197–206.
  • Parchomiuk, M (2012). Specialists and Sexuality of Individuals with Disability, in: Sexuality and Disability 30(4), 407-419.
  • Shakespeare, T. (2000). Disabled Sexuality: Towards Rights and Recognition, in: Sexuality and Disability 18(3), 159-166.
  • Shakespeare, T., Gillespie-Sells, K. & Davies, D. (1996). The sexual politics of disability: untold desires. London : Cassell.
  • Shildrick, M. (2004). Silencing Sexuality: The regulation of the disabled body. In: Carabine, J. (Ed.), Sexualities, personal lives and social policy. Bristol: The Policy Press. 124-155.
  • Shildrick, M. (2007). Contested pleasures: The sociopolitical economy of disability and sexuality, in: Sexuality Research and Social Policy 4(1), 53-66.
  • Shuttleworth, R.P. (2007). Disability and sexuality: Toward a constructionist focus on access and the inclusion of disabled people on the sexual rights movement. In:  Teunis, N. & Herdt, G. (Eds.), Sexual inequalities and social justice. Berkeley : University of California Press. 174-207.
  • Swango-Wilson, A. (2010). Systems Theory and the Development of Sexual Identity for Individuals with Intellectual/Developmental Disability, in: Sexuality & Disability 28(3), 157-164.
  • Stavis, P. (1991). Harmonizing the right to sexual expression and the right to protection from harm for persons with mental disability, in: Sexuality and Disability 9(2), 131-141.
  • Traustadottir, R., & Johnson, K. (Eds.) (2000). Women with intellectual disabilities: Finding a place in the world. London: Jessica Kingsley.
  • Winter, S. (2009). Are Human Rights Capable of Liberation? The Case of Sex and Gender Diversity, in: Australian Journal of Human Rights 15(1), 151-174.

 

b. Procreation

  • Aunos, M. & Feldman, M. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities, in: Journal of Applied Research in Intellectual Disabilities 15, 285–296.
  • Shuger, N. (1979). The Legal Rights of Handicapped Persons with Regard to Procreation, in: Sexuality and Disability 2(3), 216-230.
  • Velde, B. & Emes, C. (2006). Recreation and Adults with Down syndrome. Portsmouth: The Down Syndrome Educational Trust.

 

c. Parenthood and Intellectual Disability

  • Areschoug, J. (2005). Parenthood and Intellectual Disability: Discourses on Birth Control and Parents with Intellectual Disabilities 1967–2003, in: Scandinavian Journal of Disability Research 5(3-4), 155-175.
  • Blackford, K. A. (1993). Erasing mothers with disabilities through Canadian family related policy. Disability, in: Handicap & Society 8(3), 281-294.
  • Burton-Smith, R., Morgan, M.J. & Davidson, J.A. (2005). Does the daily choice making of adults with intellectual disability meet the normalisation principle?, in: Journal of Intellectual and Developmental Disability 30(4), 226–235.
  • Foley, S. (2012). The UN Convention on the Rights of Persons with Disabilities: A Paradigm Shift in the Sexual Empowerment of Adults with Down Syndrome or More Sound and Fury Signifying Nothing?, in: Sexuality and Disability 30(4), 381-393.
  • May, D. & Simpson, M.K. (2003). The parent trap: marriage, parenthood and adulthood for people with intellectual disabilities, in: Critical Social Policy 23(1), 25–43.
  • Saaltink, R., MacKinnon, G., Owen, F. and Tardif-Williams, C. (2012). Protection, participation and protection through participation: young people with intellectual disabilities and decision making in the family context, in: Journal of Intellectual Disability Research 56(11), 1076–1086.

 

7. Right to Health

  • Bickenbach, J. (2013). Disability, 'Being Unhealthy,' and Rights to Health, in: Journal of Law, Medicine & Ethics, 41 (4), S. 821-828.
  • Burke, M.A. (2009). Operationalizing Human Rights and Human Security Through a Dynamic Model of Health, in: Review of Disability Studies, 5(3), 23 – 37.
  • Burns, J.K. (2009). Mental Health and Inequity: A Human Rights Approach to Inequality, Discrimination and Mental Disability, in: Health and Human Rights, 11(2), 19 – 31.
  • Chapman, A. (2009). Globalization, Human Rights and the Social Determinants of Health, in: Bioethics, 23(2), 97-111.
  • Doyal, L. (2002). The Moral Foundation of the Clinical Duties of Care: Needs, Duties and Human Rights, in: Bioethics, 15(5-6), 520-535.
  • d’Oronzio, J.C. (2001). A Human Right to Healthcare Access: Returning to the Origins of the Patients' Rights Movement, in: Cambridge Quarterly of Healthcare Ethics, 10(3), 285-298.
  • d’Oronzio, J.C. (2001). The Integration of Health and Human Rights: An Appreciation of Jonathan M. Mann, in: Cambridge Quarterly of Healthcare Ethics, 10(3), 231–240.
  • Gostin, L. (2001). Beyond Moral Claims: A Human Rights Approach in Mental Health, in: Cambridge Quarterly of Healthcare Ethics, 10(3), 264 – 274.
  • Hunt, Paul & Mesquita, J. (2006). Mental Disability and the Human Right to the Highest Attainable Standard of Health, in: Human Rights Quarterly, 26, 332-356.
  • Kottow, M. (2003). The Vulnerable and the Susceptible, in: Bioethics, 17(5-6), 460-471.
  • Lord, J.E., Suozzi, D. & Taylor, A.L. (2010). Lessons from the Experience of U.N. Convention on the Rights of Persons with Disabilities: Addressing the Democratic Deficit in Global Health Governance, in: Journal of Law, Medicine & Ethics, 38(3), 564–579.
  • Marks, S.P. (2002). The Evolving Field of Health and Human Rights: Issues and Methods, in: Journal of Law, Medicine & Ethics, 30(4), 739–754.
  • Matheson, D. (2009). A right to health: Medicine as Western cultural imperialism?, in: Disability & Rehabilitation, 31(14), 1191-1204.
  • Meier, B.M. (2007). Advancing Health Rights in a Globalized World: Responding to Globalization through a Collective Human Right to Public Health, in: Journal of Law, Medicine & Ethics, 35(4), 545–555.
  • Murray, P. (2000). Disabled children, parents, and professionals: Partnership on whose terms?, in: Disability & Society, 15, 683 – 698.
  • Silvers, A., Francis, L. (2013). Human Rights, Civil Rights: Prescribing Disability Discrimination Prevention in Packaging Essential Health Benefits, in: Journal of Law, Medicine & Ethics, 41(4), S. 781-791.
  • Silvers, A. & Stein, M.A. (2003). Human Rights and Genetic Discrimination: Protecting Genomics’Promise For Public Health, in: Journal of Law, Medicine & Ethics, 31(3), 377–389.
  • Stover, E., Weinstein, H. (2001). Health, Human Rights, and Ethics, in: Cambridge Quarterly of Healthcare Ethics, 10, 335.
  • Wolbring, Gregor. 2011. Water Discourse, Ableism, and Disabled People: What Makes One Part of a Discourse?, in: Eubios Journal of Asian and International Bioethics, 21 (6): 203-207.

 

8. Right to Life

 

8.1 Personhood

  • Amundson, R., & Tresky, S. (2008). Bioethics and Disability Rights: Conflicting Values and Perspectives, in: Journal of Bioethical Inquiry, 5(2-3), 111 – 123.
  • Bickenbach, J. (2001). Disability Studies and Bioethics, in: American Journal of Bioethics, 1(3), 49-50.
  • Ralston, D. & Ho, J. (2007). Disability, Humanity and Personhood: A Survey of Moral Concepts, in: Journal of Medicine and Philosophy, 32(6), 619-633.
  • Silvers, A. (2012). Moral status: what a bad idea!, in: Journal of Intellectual Disability Research, 56(11), 1014–1025.

 

8.2 Liberal Eugenics

  • Cooper, Rachel (2007). Can It Be a Good Thing to Be Deaf?, in: Journal of Medicine and Philosophy, 32(6), 563-583.
  • Eltis, K. (2007). Genetic Determinism and Discrimination: A Call to Re-Orient Prevailing Human Rights Discourse to Better Comport with the Public Implications of Individual Genetic Testing, in: Journal of Law, Medicine & Ethics, 35(2), 282–294.
  • Nunes, Rui (2006). Deafness, Genetics and Dysgenics, Medicine, in: Health Care and Philosophy, 9(1), 25-31.
  • Miller, P.S. & Levine, R.L. (2013). Avoiding genetic genocide: understanding good intentions and eugenics in the complex dialogue between the medical and disability communities, in: Genetics in Medicine, 15(2), 95–102.
  • Shakespeare, T. (2011). Choices, reasons and feelings: Prenatal diagnosis as disability dilemma, in: ALTER - European Journal of Disability Research, 5(1), 37-43.
  • Wolf, S.M. & Kahn, J.P. (2007). Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy, in: Journal of Law, Medicine & Ethics, 35(2), 6–32.
  • Yan, E.G & Munir, K.M. (2004). Regulatory and Ethical Principles in Research Involving Children and Individuals with Developmental Disabilities, in: Ethics and Behavior, 14(1), 31-49.
  • Opton Jr., E.M.(2004). Protecting Human Subjects in Biomedical Research-- Some Reasons for Optimism and Pessimism, in: Journal of Disability Policy Studies, 15(1), 60-61.
  • Iacono, T. & Carling-Jenkins, R. (2012). The human rights context for ethical requirements for involving people with intellectual disability in medical research, in: Journal of Intellectual Disability Research, 56(11), 1122–1132.

 

8.3 Euthanasia

  • Appel J.M. (2009). Neonatal Euthanasia: Why Require Parental Consent, in: Journal of Bioethical Inquiry, 6(4), 477-482.
  • Gloria, L. & Krahn, G.L. (2010). Reflections on the debate on disability and aid in dying, in: Disability and Health Journal, 3(1), 27-34.
  • Zanskas, S. & Coduti, W. (2006). Eugenics, Euthanasia, and Physician Assisted Suicide: An Overview for Rehabilitation Professionals, in: Journal of Rehabilitation, 72(1), 27-34.

 

8.4 Peter Singer

  • Anstötz, C. (1988). Heilpädagogische Ethik auf der Basis des Präferenz-Utilitarismus, in: Behindertenpädagogik, 27(4), 368–382.
  • Anstötz, C. (1990). Peter Singer und die Pädagogik für Behinderte, in: Analyse & Kritik, 12(2), 131–148.
  • Birnbacher, D. (1990). Utilitaristische Ethik und Tötungsverbot. Zu Peter Singers Praktische Ethik, in: Analyse & Kritik, 12(2), 205–218.
  • Düwell, M. (2003). Utilitarismus und Bioethik: Das Beispiel von Peter Singers Praktischer Ethik. In Düwell, M. & Steigleder, K. (Eds.), Bioethik: Eine Einführung. Frankfurt am Main: Suhrkamp. 57–71.
  • Hegselmann, R., & Merkel, R. (Eds.). (1991). Zur Debatte über Euthanasie: Beiträge und Stellungnahmen. Frankfurt am Main: Suhrkamp.
  • Jantzen, W. (1991). “Praktische Ethik” als Verlust der Utopiefaehigkeit - Anthropologische und naturphilosophische Argumente gegen Peter Singer, in: Behindertenpädagogik, 30(1), 11–25.
  • Kuhse, H., & Singer, P. (1985). Should the baby live? The problem of handicapped infants. New York: Oxford University Press.
  • Ribbert, U. (1990). Bibliographie zur “Singer-Debatte.”, in: Geistige Behinderung, 4, 416–422.
  • Singer, P. (1975). Animal liberation. London: Avon Books.
  • Singer, P. (1979). Practical ethics. Cambridge: Cambridge University Press.
  • Singer, P. (1990). The “Singer-Affair” and Practical Ethics: A Response, in: Analyse & Kritik, 12(2), 245–264.
  • Singer, P. (2009). Speciesism and Moral Status, in: Metaphilosophy, 40(3-4), 567–581.
  • Wertgen, A. (2009). Empörung und Hilflosigkeit: Zur Kritik deutschsprachiger Sonderpädagogen an der moralphilosophischen Position Peter Singers. Berlin: Lit.